My husband will shave his beard off if I can raise £60. Please help my wish come true and also help raise a little for Aspergillosis Trust. I live with this disease in my lungs and my family are there through all my ongoing treatments, hospital stays and good and bad days.
Hopefully in the near future more people will be diagnosed early enough to recieve treatment too.
Update February 2019: £183 raised. Beard successfully removed!
Post expires at 9:23am on Friday February 28th, 2020
Tina & Matteo successfully jumped out of an aeroplane in aid of the Aspergillosis Trust on Sunday 24th June 2018. Tina and Matteo are the daughter and Grandson of a very proud Jean Jones.
As of 25th June £380 had been raised with more coming in from other sources. You can still contribute – donations made using this link will go directly to the Fungal Infection Trust with Gift Aid added where possible.
My step-dad Derek Campbell, a 51-year-old non-smoker, was diagnosed last year with a rare and incurable lung condition called Chronic Pulmonary Aspergillosis.
Chronic Pulmonary Aspergillosis (CPA) affects 3 million people around the world, but is very often mis-diagnosed and confused with other health problems such as cancer or tuberculosis. Treatment of CPA is most often using antifungal drugs, which can be effective in limiting the advance of the disease though cannot cure it.
Unfortunately, Derek has been found to have a very complicated case affecting both lungs and it is inoperable. He receives antifungal therapy to try and slow the infection down, but has already found to be resistant to one of the main medications used to treat the condition.
This is why even although I’m not a runner I have chosen this challenge to try and raise funds for the charity FIT (Fungal Infection Trust) on the 11th March 2018, in the hope that with further research and awareness one day a cure may be found. If you can help in even the smallest way it would be very much appreciated.
Fundraiser update: Gemma’s run aimed to raise £500 but has managed to exceed their target several-fold. Over £1500 was raised by this event. Many thanks from the FIT to everyone involved. Go here for full details
Thanks to our brilliant fundraisers the Fungal Infection Trust has raised over £12000 from individual donors and events in 2017. This money forms a vital extra fund that supports our research and educational projects.
Hi, thanks for visiting my page. Through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity’s behalf where the donor is eligible for this. I really appreciate all your support and thank you for any donations.
I’m fundraising for the Fungal Infection Trust because, unsexy topic though it is, I’ve been living for the last few years with a condition I had never ever heard of, and I doubt you have either – aspergillosis. Aspergillus is a fungus that’s everywhere but can opportunistically cause allergy or infection to people with some kinds of vulnerability. Mine appears to be genetic, and managing my condition takes about 90 minutes each day, with nebulised medicines and very precise chest drainage physio. Running is my salvation – I loved it anyway but now i do it to keep as well as I can. I’m also very lucky to be well enough to have a good baseline, lots of friends from my Aspergillosis community are less fortunate. I’m also helped by 2 amazing NHS hospitals – Royal Brompton where I am a patient and where i recently spent 11 days having intravenous antibiotics – an occasional hazard of my condition, made all the more hazardous by proximity to the clothes shops of the King’s Road Chelsea. And the Wythenshawe in Manchester which is the national centre of excellence for this condition and where a lot of patient support initiatives are run, which people with aspergillosis anywhere in the world can tap into. So – my life has changed beyond recognition, and some of my future aspirations are a bit in doubt due to this condition, but I’m still here – and thanks to my ultra boost of antibiotics recently, I’m hoping to run 10k. Please donate, as fungal infection is on the rise worldwide – perhaps due to climate change (disclaimer – I’m not 100% sure on that), and it is a scary thing to deal with.
Roger Ryder’s wife Ruth organised a collection in aid of the Fungal Infection Trust in Memory of Roger who died in August 2017 of aspergillosis. Incredibly that collection has now exceeded £4500 which must serve as a reminder of how much Roger was loved by everyone he knew and missed by all.
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