London Marathon 2015 - Jenny Long
- February 13, 2018
Chronic Pulmonary Aspergillosis (CPA) affects 3 million people around the world, but is very often mis-diagnosed and confused with other health problems such as cancer or tuberculosis. Treatment of CPA is most often using antifungal drugs, which can be effective in limiting the advance of the disease though cannot cure it.
Unfortunately, Derek has been found to have a very complicated case affecting both lungs and it is inoperable. He receives antifungal therapy to try and slow the infection down, but has already found to be resistant to one of the main medications used to treat the condition.
This is why even although I’m not a runner I have chosen this challenge to try and raise funds for the charity FIT (Fungal Infection Trust) on the 11th March 2018, in the hope that with further research and awareness one day a cure may be found. If you can help in even the smallest way it would be very much appreciated.
- December 22, 2017
Thanks to our brilliant fundraisers the Fungal Infection Trust has raised over £12000 from individual donors and events in 2017. This money forms a vital extra fund that supports our research and educational projects.
- December 5, 2017
Hi, thanks for visiting my page. Through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity’s behalf where the donor is eligible for this. I really appreciate all your support and thank you for any donations.
I’m fundraising for the Fungal Infection Trust because, unsexy topic though it is, I’ve been living for the last few years with a condition I had never ever heard of, and I doubt you have either – aspergillosis. Aspergillus is a fungus that’s everywhere but can opportunistically cause allergy or infection to people with some kinds of vulnerability. Mine appears to be genetic, and managing my condition takes about 90 minutes each day, with nebulised medicines and very precise chest drainage physio. Running is my salvation – I loved it anyway but now i do it to keep as well as I can. I’m also very lucky to be well enough to have a good baseline, lots of friends from my Aspergillosis community are less fortunate. I’m also helped by 2 amazing NHS hospitals – Royal Brompton where I am a patient and where i recently spent 11 days having intravenous antibiotics – an occasional hazard of my condition, made all the more hazardous by proximity to the clothes shops of the King’s Road Chelsea. And the Wythenshawe in Manchester which is the national centre of excellence for this condition and where a lot of patient support initiatives are run, which people with aspergillosis anywhere in the world can tap into. So – my life has changed beyond recognition, and some of my future aspirations are a bit in doubt due to this condition, but I’m still here – and thanks to my ultra boost of antibiotics recently, I’m hoping to run 10k. Please donate, as fungal infection is on the rise worldwide – perhaps due to climate change (disclaimer – I’m not 100% sure on that), and it is a scary thing to deal with.
- December 5, 2017
Our mum sadly passed away this year from the disease called “Aspergillus”.
Many people are not aware of this disease and it can be difficult to diagnose.
Although our mum had other illnesses the chances of her being cured were highly unlikely. However, had she had seen specialists who are experts in this disease and her final months may have been made more pleasant for her with special medication.
Although she was 83 she lived her life to the full, was very on trend and looked after herself and her home with pride.
We want to raise awareness for FIT / Fungal Infection Trust for their research into Aspergillus and help people who suffer from this illness
She has left a massive void in our lives and we shall always miss her deeply xx
Written by Ellen Davies, December 2017
- February 20, 2017
- April 28, 2015
Congratulations to Jenny who completed the London Marathon in under 4h – crossing the finish line in 3h 59 m 40 s – which is a brilliant time.
We would like to thank all of the supporters of Jenny Long, who so generously donated to our project on fungal lung infections. The money will be used to start a programme of research to understand any genetic links between tyrosine kinases in airways cells and aspergillus infections- why do some people get ABPA and not others.
Here are some photos from the 26.2 mile trip! View Jenny's marathon stats here.
- April 14, 2015
This means I'm tapering down the distances and trying to prevent any injuries! Thank you so much for all of the generous donations.
If you want to see how the mushroom hat was made – or make one yourself- its now on YouTube here.
- April 8, 2015
I thought I would share this video that was taken in my local park – I have this amazing hat designed along the theme of a giant mushroom/toadstool. So I went for a jog in my local park to try it out ! I certainly got lots of attention – I am hoping I will get lots of attention and publicity on the day too. We need to tell people about LIFE threatening fungal infections – how they spread from the lungs – and how the FIT wants to raise enough money for this genetic study – to research why some people may be more susceptible than others.
Take a look at the video of my hat; if you feel like making your own- the hat designer has made a "How to " video as well!
- February 3, 2015
Managed to survive my longest run to date… 20 miles… last weekend! I felt surprisingly ache-free afterwards! Less than four weeks to go now and it's all seeming very real.
I made heads turn in my local park – when I turned up wearing … this amazing hat! To draw attention to our fund raising campaign for the Fungal Infection Trust – I will be running in this superb "mushroom" hat!! What do you think?
Want to see the video?