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FIT is now enrolled and active as a member of Amazon Smile.

Got to https://smile.amazon.com/gp/chpf/about/ and choose ‘Fungal Infection Trust’ as your charity when prompted.

Once complete a proportion (0.5%) of every Amazon purchase will go to the Fungal Infection Trust.

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Post expires at 2:15pm on Saturday June 22nd, 2019

Sky-Diving Fundraiser Raises over £400 for the Fungal Infection Trust

Watch a video here 

Tina & Matteo successfully jumped out of an aeroplane in aid of the Aspergillosis Trust on Sunday 24th June 2018. Tina and Matteo are the daughter and Grandson of a very proud Jean Jones.

As of 25th June £380 had been raised with more coming in from other sources. You can still contribute – donations made using this link will go directly to the Fungal Infection Trust with Gift Aid added where possible.

Jean Jones

Post expires at 12:20pm on Friday June 14th, 2019

Agnes Kay: Running Edinburgh EMF 2018 Half Marathon

My story

Please help raise funds to raise awareness and support these three charities in aid of me running this years EMF Half Marathon on 27th May.

Fungal Infection Trust – for my dad who was diagnosed with Aspergillosis a couple of years ago – I’d like to continue to raise funds for FIT and support their research in these life threatening fungal infections and to help support patients like my father.

The UK Foundation for Kawasaki Disease something which is close to our family, as my nephew was recently diagnosed with KD during April 2018.

When it was first mentioned the response was that it was the same name as the motorbikes range!?!

I have decided to raise money for Society whose aims are to raise more awareness of the condition across the UK as well as push for better diagnosis, treatment and national protocols.

Around 8 in every 100,000 children develop Kawasaki disease in the UK each year, however is more common in countries of Japan and Asia.

What is Kawasaki Disease? – Kawasaki disease is a rare condition that mainly affects children under the age of five. The characteristic symptoms are a high temperature that lasts for more than five days with:

  • a rash
  • swollen glands in the neck
  • dry cracked lips
  • red fingers or toes
  • sore/red eyes

The symptoms of Kawasaki disease are similar to those of an infection, although the exact cause is not fully understood. Kawasaki disease causes the blood vessels to become inflamed and swollen, which can lead to complications in the coronary arteries (the blood vessels that supply blood to the heart).

Up to 5% of children with Kawasaki disease experience complications with their heart. In about 1% of cases, the complications can be fatal.

Thanks to the doctors diagnosis at the Sick Kids Hospital in Edinburgh, my nephew Robin recovered well following his 2 week stay. He will be closely monitored and have regular tests to ensure that he doesn’t have any lasting side effects.

So early diagnosis of KD and treatment is directly linked to improved outcomes.

My other two charities are:

Mental Health UK – everyone knows at least one person who has or is suffering with mental health and it’s heartbreaking to see. I would like to help where I can by raising funds for this charity who can provide the extra mental health support that many people need.

Thanks for taking the time to visit my page and reading my story – I’ll appreciate any donation, big or small, to give towards these great causes.

Donate to Agnes’ Fundraiser here

Post expires at 8:34am on Wednesday May 1st, 2019

Our Fantastic Donors

Over the last ten years, we have calculated that over 850 individual people (March 2018) have donated to the Fungal Infection Trust using our Virgin Money Giving donation facility. There have been over 1350 donations in that time. Hundreds more people have given direct to our fundraisers during the organised events.

Many more have given us donations via cheque and cash, though they are much more difficult for us to count so we cannot quickly come up with a total number going back that far, but it is probably safe to say that total numbers of people who have given to the Fungal Infection Trust exceed 2000.

We are currently receiving over £10 000 per year from personal donations, which is a measure of the concern and commitment to the aims of the Fungal Infection Trust. FIT also successfully applies for grants to support its work from several different organisations every year, but the commitment of the individual people who support us counts for far more than mere funding. Every time someone donates we have another new person who has become aware of our activities and of the need to find ways to better find, diagnose and treat serious fungal infections such as aspergillosis.

The Fungal Infection Trust is a small charity that supports lots of research and ensures that the amount spent on administration is minimised, consequently we employ no staff and operate with the minimum of paperwork. Because of this there may well be donors we have not thanked directly but please be reassured every penny counts and every penny raised is deeply appreciated.

We have considered making a list of donors available on our website so we can confirm receipt of all donations, but we are advised against that due to concerns over privacy. If anyone is concerned about a donation please get in touch at admin@fungalinfectiontrust.org

Thank you

Gemma Cleland – 5k challenge for Fungal Infection Trust

My story

My step-dad Derek Campbell, a 51-year-old non-smoker, was diagnosed last year with a rare and incurable lung condition called Chronic Pulmonary Aspergillosis.

Chronic Pulmonary Aspergillosis (CPA) affects 3 million people around the world, but is very often mis-diagnosed and confused with other health problems such as cancer or tuberculosis. Treatment of CPA is most often using antifungal drugs, which can be effective in limiting the advance of the disease though cannot cure it.

Unfortunately, Derek has been found to have a very complicated case affecting both lungs and it is inoperable. He receives antifungal therapy to try and slow the infection down, but has already found to be resistant to one of the main medications used to treat the condition.

This is why even although I’m not a runner I have chosen this challenge to try and raise funds for the charity FIT (Fungal Infection Trust) on the 11th March 2018, in the hope that with further research and awareness one day a cure may be found. If you can help in even the smallest way it would be very much appreciated.

Thank you,
Gemma

Fundraiser update: Gemma’s run aimed to raise £500 but has managed to exceed their target several-fold. Over £1500 was raised by this event. Many thanks from the FIT to everyone involved. Go here for full details

Fran Pearson’s Fundraiser

Hi, thanks for visiting my page. Through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity’s behalf where the donor is eligible for this. I really appreciate all your support and thank you for any donations.

I’m fundraising for the Fungal Infection Trust because, unsexy topic though it is, I’ve been living for the last few years with a condition I had never ever heard of, and I doubt you have either – aspergillosis. Aspergillus is a fungus that’s everywhere but can opportunistically cause allergy or infection to people with some kinds of vulnerability. Mine appears to be genetic, and managing my condition takes about 90 minutes each day, with nebulised medicines and very precise chest drainage physio. Running is my salvation – I loved it anyway but now i do it to keep as well as I can. I’m also very lucky to be well enough to have a good baseline, lots of friends from my Aspergillosis community are less fortunate. I’m also helped by 2 amazing NHS hospitals – Royal Brompton where I am a patient and where i recently spent 11 days having intravenous antibiotics – an occasional hazard of my condition, made all the more hazardous by proximity to the clothes shops of the King’s Road Chelsea. And the Wythenshawe in Manchester which is the national centre of excellence for this condition and where a lot of patient support initiatives are run, which people with aspergillosis anywhere in the world can tap into. So – my life has changed beyond recognition, and some of my future aspirations are a bit in doubt due to this condition, but I’m still here – and thanks to my ultra boost of antibiotics recently, I’m hoping to run 10k. Please donate, as fungal infection is on the rise worldwide – perhaps due to climate change (disclaimer – I’m not 100% sure on that), and it is a scary thing to deal with.

Fran raised an excellent £156 for the Fungal Infection Trust with this event. Go here for more details

In memory of Joan Davies

Our mum sadly passed away this year from the disease called “Aspergillus”.

Many people are not aware of this disease and it can be difficult to diagnose.

Although our mum had other illnesses the chances of her being cured were highly unlikely. However, had she had seen specialists who are experts in this disease and her final months may have been made more pleasant for her with special medication.

Although she was 83 she lived her life to the full, was very on trend and looked after herself and her home with pride.

We want to raise awareness for FIT / Fungal Infection Trust for their research into Aspergillus and help people who suffer from this illness

She has left a massive void in our lives and we shall always miss her deeply xx

Written by Ellen Davies, December 2017

Donate here

Fundraiser update: this appeal is ongoing but so far (March 2018)  £560 has been raised in memory of Joan, over half of which was raised by a cake sake in December 2017

Post expires at 9:54am on Saturday May 18th, 2019