Thanks to our brilliant fundraisers the Fungal Infection Trust has raised over £12000 from individual donors and events in 2017. This money forms a vital extra fund that supports our research and educational projects.
Post expires at 9:55am on Saturday May 18th, 2019
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I’m fundraising for the Fungal Infection Trust because, unsexy topic though it is, I’ve been living for the last few years with a condition I had never ever heard of, and I doubt you have either – aspergillosis. Aspergillus is a fungus that’s everywhere but can opportunistically cause allergy or infection to people with some kinds of vulnerability. Mine appears to be genetic, and managing my condition takes about 90 minutes each day, with nebulised medicines and very precise chest drainage physio. Running is my salvation – I loved it anyway but now i do it to keep as well as I can. I’m also very lucky to be well enough to have a good baseline, lots of friends from my Aspergillosis community are less fortunate. I’m also helped by 2 amazing NHS hospitals – Royal Brompton where I am a patient and where i recently spent 11 days having intravenous antibiotics – an occasional hazard of my condition, made all the more hazardous by proximity to the clothes shops of the King’s Road Chelsea. And the Wythenshawe in Manchester which is the national centre of excellence for this condition and where a lot of patient support initiatives are run, which people with aspergillosis anywhere in the world can tap into. So – my life has changed beyond recognition, and some of my future aspirations are a bit in doubt due to this condition, but I’m still here – and thanks to my ultra boost of antibiotics recently, I’m hoping to run 10k. Please donate, as fungal infection is on the rise worldwide – perhaps due to climate change (disclaimer – I’m not 100% sure on that), and it is a scary thing to deal with.
Fran raised an excellent £156 for the Fungal Infection Trust with this event. Go here for more details
Our mum sadly passed away this year from the disease called “Aspergillus”.
Many people are not aware of this disease and it can be difficult to diagnose.
Although our mum had other illnesses the chances of her being cured were highly unlikely. However, had she had seen specialists who are experts in this disease and her final months may have been made more pleasant for her with special medication.
Although she was 83 she lived her life to the full, was very on trend and looked after herself and her home with pride.
We want to raise awareness for FIT / Fungal Infection Trust for their research into Aspergillus and help people who suffer from this illness
She has left a massive void in our lives and we shall always miss her deeply xx
Written by Ellen Davies, December 2017
Fundraiser update: this appeal is ongoing but so far (March 2018) £560 has been raised in memory of Joan, over half of which was raised by a cake sake in December 2017
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